Notable Facts about Pulmonary Fibrosis

  • Five million people worldwide are affected by pulmonary fibrosis
  • 40,000 people die from Pulmonary Fibrosis (PF) annually (The same number of fatalities as breast cancer)
  • ANYONE can get PF – adults between ages 30-80 are at higher risk
  • Treatment – There is currently no FDA approved treatment or cure for PF
  • Since 1999 the number of patients with PF has increased by 156%
  • More than 50% of cases are misdiagnosed for a year or more
  • PF is relentlessly progressive and terminal: Patients typically pass away within two to five years of
    diagnosis
  • PF is relentlessly progressive and terminal: Patients typically pass away within two to five years of
    diagnosis
  • PF receives considerably less funding than other rare, deadly diseases that affect fewer people, such as ALS
  • Lung Transplantation is currently the only treatment option to extend survival